THALASSEMIA SOCIETY OF MAURITIUS

Thalassemia is a hereditary form of anemia and children...

Thalassemia is a hereditary form of anemia and children born with it require blood transfusions throughout their lives. There are currently about 150 transfusion-dependent thalassemia patients In Mauritius, each patient requiring at least two units of blood transfused every three to four weeks. 

The Society is an NGO run by volunteers, thalassemia patients and their families, with the following objectives:

 

  • To provide moral support to all those with thalassemia, and their families, to overcome emotional and psychological problems
  • To counsel and educate thalassemia patients and their families on the illness’s management
  • To campaign for blood donations for thalassemia patients
  • To press for the for creation of better transfusion & treatment facilities
  • To raise funds and provide equipment and medicines for less well-off thalassemia patients
  • To create public awareness
  • To collaborate as appropriate with the Ministry of Health and Quality of Life, other NGOs, WHO, and regional and international thalassemia groups and societies such as the Thalassemia International Federation
  • To provide support to patients of other genetic haematological disorders such a sickle cell anaemia, haemophilia and leukaemia.

 

LUX* Resorts & Hotels supports the Society and recently that support came in a very original manner. LUX* Belle Mare held a French Culinary Week in March 2015 as part of a worldwide event to celebrate French cuisine. It included a dinner at its beach restaurant, Beach Rouge, open to the public, at which 5% of the income was handed over to the Thalassemia Society.